4/11/2013
8:01 PM This is Thursday, sunset time.
Time-warp, foggy tunnel, drifting in the Sargasso Sea; these
images come to mind in re the last 24 hours.
If it hadn’t been for Janet I would have missed a port flush
appointment. The docs in PO seemed so
behind that I didn’t let them work on my toes today. Yesterday the medicos in Bremerton were so slow
we had to say we’d come back tomorrow (that was today) and still we had to
nudge and beg to get a small procedure done.
My mind is partly on vacation as I try to assess what I have to do
before I go back to Sutentlandia; I hear there has been civil war over
there again.
Other than the medical fog, it’s been a lovely spring
day. I can’t believe I actually retire
next week. We will have a Retirement
Party the week after.
I asked the Oncologist to please defer the Sutent until
after the party. Even with the Sutent in
abeyance, like now, the symptoms are occasionally too ugly to mention, so I don’t
dare start up again with Sutent and try to do something social miles away from
home. Hometown has taken on a new meaning now.
And I have lived in this very building longer than any other building in
my whole peripatetic life. So it goes.
Anyway, the Oncologist said we could “fudge” the timing a
bit. And I asked for another MRI because
I’m worried about this stuff getting into my brain, and I asked what would be
our DEW line (he’s old enough to know what I mean) and he said “headaches and
vision changes” and I said “I have headaches and vision changes” so he allowed
us another MRI. That will be next
week. My Primary Doc said that the brain
changes wouldn't usually be cognitive changes, more likely headaches and vision
changes and seizures. Somehow I didn’t
find any of this very comforting. Maybe
that is what the fog is around here, the fog of vague discomfort.
I was by my father’s side when he had a minor seizure. He was already hospitalized for a malignant brain
tumor. When he went into his seizure, I
yelled so loud for the nurse (ie: “NUURRRSE!!!”) that she came running but had
to give me a dirty look. Sometimes I
just can’t be trusted to behave.
Best to you all for caring.
I don’t know who all you are anymore because the readership is beyond my
mailing list numerically. But a friend
who was in Asia tried viewing many times from several countries and I think
must have activated some Tibetan prayer wheels too. Thanks to you all.
