Dark for hours, definitely a spring
night after a lovely spring day.
The good news is that the radiologists
say that MRI shows no metastasis in the brain.
The next phone call said, hold on, the Oncologist wants to review the
MRI himself. So more tomorrow.
I’ll probably have to nudge 3 agencies in 3 cities
tomorrow. Not only am I asking for 3
different “controlled substances” but I’m asking for more Sutent before I even
start the first half. I think my Oncologist’s
retirement, and mine, complicates Round Two, and I’m just asking that I have
the full course on the table before I start Round Two. It’s 4 weeks on and then 2 weeks off and then
“bis” (at least I somehow remember that as a repeat in musical notation)(Is
that Portuguese or English that I’m remembering?) I only have enough Sutent for half of Round
Two. I don't want to risk the Powers That Be changing their mind in re Sutent, leaving me with just half the normal dose. It will be interesting to see how the argument goes over.
Please try to imagine me enjoying being 2 weeks away from
Sutent. For now I can eat crispy stuff
without pain and even enjoy some sweet stuff without distaste. I’m trying to notice and remember how much
more awake and aware I am now. Some of
the side-effects don’t go away, or haven’t, but many have and I feel much
better this week, overall. Gotta enjoy
what you got while you got it.
