Today is the last dose of Sutent. And if I’m reading my oncologist correctly,
the end of the Sutent buildup, meaning the symptoms should decrease. Should.
Sounds good anyway. Seeing how the
effects of the Temsirolimus have not gone away, I’m allowing myself some
skepticism. I’ll take two weeks off from
Sutent and then start up on another 4 week course.
I frequently think I’m giving you too much information, but
then I remind myself that you have only to turn to another screen.
The docs can’t see my feet until Tuesday.
The sleep study people lost all the data and say I have to
come in again on Monday.
The Phlebotomist said today’s blood has to go to a lab in
Tukwila before I get a reading. This is
the same anti-coagulation reading that is given to us immediately when a
different person pricks my finger and reads the INR number of a little hand
held meter, much like my gluco-meter. I wanted to see if they could
reduce my blood thinner as I think it has gotten too thin already. In my layman’s mind, thin blood and rashes
and sores are not a good mix.
But I’m on the AMA conveyor belt. Tomorrow I should get the next allotment of
Sutent, plus some other drugs. I got on
this conveyor belt and I’m not getting off until I feel the AMA options are
exhausted. I’m already exhausted, so let’s
hope the AMA has some other tricks up its sleeve.
I’m still finding it difficult to find others with pRCC, so
perhaps I’m going about it the wrong way.
I thought it would not be too difficult to compare treatment paths, but
everyone is so different. And I can only
afford moments on the web before I get
tired. Like now, so I better quit.
