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Sunday, March 17, 2013

LOG DATE SUNDAY MORNING 3/17/2013 10:47:55 AM


LOG DATE SUNDAY MORNING 3/17/2013 10:47:55 AM

I do get some advice on how to proceed with this blog: avoid areas that elicit the TMI reaction, speak more personally, slide from medical into philosophical, etc. I also get views from places I know not.  I do have a niece in Indonesia, but I only get hits from Malaysia.  I don’t believe know anyone in S. Korea or Germany, though there was mention of a lost relative during the cold war.   Naturally, the countries that make the most views are America, Panama, Japan, and Canada, in other words Janet’s and my family connections.  Besides, most of my friends are in America.  There are a few hits from Brazil.

SUTENT NEWS: we are in week two, the skin and GI effects are in full swing.   (This is where I’m supposed to remember the TMI caveat.) 

It looks like there will be no interruption in medical service before April so this insures that I will get the CT scan I need.  When we switch to the new retiree system, well, I suppose there will be some changes in how we are treated.  Then the oncologist is going to retire anyway: more changes.  If SUTENT is doing some good, we will want to continue on it, and that is where the new Medicare A+B+GroupHealth system rules come in.  Just a reminder: SUTENT alone is $10,000 per month.

I remember when my Dad had his wisdom teeth removed; it was quite an arduous operation.  And ever since I’ve wondered, where are my wisdom teeth.  X-rays said they just weren’t going to be coming up.  I know I felt Solomonically deprived.  Now it seems that Sutent has uncovered one wisdom tooth; just in time for me to operate on one cylinder.  Well, if Temsirolimus can reduce warts, why can’t Sutent raise wisdom teeth.  This is strange stuff.

The pRCC listserv is a revelation, seeing what others go thru, how they cope, how they suffer. Some give up on the American system and go abroad, where life is cheaper and the rules are different.

Janet and I have formally given up on moving back to California and consider ourselves lucky to have a decent place to live in a decent town. 

“Step by Step”, mee ol’ dad used to say; “keep on trekkin’”…the next generation responded.