Search This Blog

Wednesday, January 8, 2014

Medical progress, Friday thru today Wednesday.

Back to Friday night.
I was preparing to do battle with the HMO over the PET scan.

I felt my neck stiffen.  My word room filled with “stiff neckked pride”, flown in from my KJV childhood.

When I went to bed I felt a large hot lump on my left neck shoulder line. I didn’t sleep much.
Saturday, the lump still there, I discussed the situation with the duty nurse, which resulted in our going to Silverdale’s urgent care, which then sent us to Harrison Emergency.

They did x-ray and CT scan and decided my lymph nodes were swelling, perhaps with blood.  Having determined there was no emergency (except I should get off coumadin asap) I was advised to wait and try to see my Oncologist Monday or as soon as possible.  I was given a shot of vitamin K before I left.  The theory was that I might need a biopsy or surgery and they didn’t want my thin runny blood then.  That brings us to Saturday night.

On Sunday Morning Terrill called and informed me of Mom’s death.  Sunday was mainly preoccupied with family.

On Monday, the swelling was still present, but the Oncologist was not.  The best we could do was to see the NP on Tuesday, which we did.

While with the NP the oncologist came in to have a look.  They decided there was really nothing to be done except wait.  The swelling did seem to be going down.   In a month or so we’d do another CT scan, if the PET scan is still denied. 

Now it is Wednesday, and my blood work is better, IE: sugars way down, and pressure normal.  It seems stopping coumadin has made my blood numbers better.  Now I’ll see if I can stop the blood pressure medicine, metoprolol.  Stopping the allopurinol would be good too.


In my layman’s mind, the breast pain, the neck swellings, the clogged Eustachion tubes, are all related but the AMA doesn’t seem to think so.   So it goes. 

Mother dies in her sleep.

Saturday night – Sunday morning.

On the night of the 4th/5th my mother died peacefully in her sleep in Chattanooga, TN.  She was found Sunday morning after breakfast with a smile on her face.  

My world is changed, never before having been without her.

She was 87.

I like to believe that some spiritual part continues, meets up with her husband, my father, and that the two of them are very happy.  

Now, for us, remaining in the STEM world, there are gaps where Mom used to be.  We will fill the gaps with memories.


She lived well.  She died well.  RIP.
Thallervale

1/8/2014 11:05 AM

The visit with the Oncologist.

2014 January, Friday the Third.

The Oncologist suggests extending the Sutent vacation.
Our HMO denies the recommended PET scan.   This may be appealed.
The Oncologist suggests we continue on but have a CT scan instead.

The pain in my left breast is considered and dismissed. 

2013 December

2013 December

The Urologist says that my remaining kidney is doing all the appropriate kidney functions.
He advises that I not hurt the remaining kidney.


Sorry I’ve been silent for so long, but I’ve been enjoying the Sutent vacation. 

Saturday, November 23, 2013

What?! Nothing to say?!

Saturday, November 23, 2013

I thought I'd have no medical news until
  1.  January and the PET scan, or,
  2. The tumors really kicked in.

But it’s neither.  It’s really good news: the further I get from the chemo the better I feel.  It is clearer and clearer that the cure really was worse than the disease.  I feel so much better, it’s like clamps have been taken off my mouth and brain, not to mention the other body parts.

I feel so much better off chemo, it’s going to be hard to get me back on it.  Even though there is a new drug for papillary renal cell carcinoma, Evrolimus, it would take some arm twisting to get me to try it. 

Anyway, the oncologist has said radiation is probably next anyway.   Personally I favor cryoablation, but I don’t know if that is allowed or possible.

So there’s the good news for a change. 
Here’s hoping winter brings you much bonum too.
Ciao,
Thallervale

11/23/2013 7:18 PM

Monday, November 18, 2013

Angiogram

Dear Folks, It's Janet who is going in for an angiogram tomorrow, so light your candles and power up your prayer wheels.

If you fly in your mind over all the homes on the planet, do you find any that are not in need of care?

Maybe that is why it was said "Pray without ceasing" or why the prayer wheels are hooked up to water wheels.  It seems like a very impractical instruction, until you see if from the needs pov.


Janet and I, we do hope, will be home safe and sound this time tomorrow.

Thanks for caring,
Blessings,
Dale


Friday, November 1, 2013

All Saints' Day : Reprieve

Friday, November 01, 2013
REPRIEVE

The visit to the Oncologist was today.  After waiting 6 weeks without chemo to see what the little critters would do, the answer is: not much. 

Some tumors have shrunk, some are indeterminate, and some are growing, but not rapidly.
So the doctor’s advice is to take two months off chemo and check on the critters then, with a PET scan this time, because he knows he needs a better picture, but he also knows it can be difficult to get the HMO to agree to the expense.  We’ve done very well with our HMO  so far, so I can be optimistic.

Two months without chemo is like going on vacation.  Especially as Janet is retiring more and more.  Something we can look forward to in the dark wet winter.

Best to you all and yes, intentions are things.
Thallervale

11/1/2013 7:01 PM